Thursday, March 20, 2008
Tuesday, October 09, 2007
Monday, May 14, 2007
Rheumatologist/Internist Visit
I don't even know where to start...
okay I'll start with what you already know....
I've been on prednisone to manage what everyone (myself and family doctor) thinks is a sarcoidosis flare up. So my family doctor had made a referral to the specialist for me.
...So I got a call last week to see if I could see the Rheumatologist/Internist on Monday (today).
So off I go...and before I was on the prednisone my inflammation level in my body was 60 something, which is very high, and I could hardly walk and stuff, and I was anemic and had chest pain (lungs) etc. so the prednisone has decreased my symtoms remarkably, but they hadn't been completely gone even on a high dosage. Even on 30 mg of prednisone, my inflammation level was still 35. (A normal person has a rate of 20). My family doctor had been slowly decreasing my prednisone to try to wean me to a lower dosage....
...So I go to see this specialist and he gets all my history, and checks all my joints, yes there is fluid in my knees...but he can't make a diagnosis while I'm on the prednisone because it's masking the symptoms. ..yeah...
I have to wean of the prednisone quickly. go down 5mg/3days til I'm off it completely, which will take less then to weeks, and we have to let all my symptoms come back, yup, the part where I can't even walk? yup...so he can see all the symtoms and make a positive diagnosis, oh and to manage the pain he gave me percocet.
I've been on that before when I had gallbladder attacks and it knocks me out. completely. So I"m like...um I can't drive or work on that..?
oh no you can't he says, I'll put you off work. No, you can't put me off work, I need to work, work=income, I need income. I know I could go on EI, but I don't want to, I want to work.
So he gave me a normal anti informatory that "might" work and manage the pain in the mean time that I can start taking once I'm completely of the prednisone, but anti inflammatories didn't work before... So he said if the pain gets bad enough that I have to take the percocet...to call and he'll put me off work... Fack!!!
He was also said that because I was on a high dosage of steroids and it didn't bring all the inflation out I may need a stronger drug, like a chemo (sp?) drug. WHAT? Are you freeking kidding me??? But he has to wait and make a positive diagnosis first. He said it could be the sarcoidosis, or it could be rheumatoid arthritis...or something different.
He said I'll have to go through allot of tests probably too, he sent me for blood tests today... 11 vials later...yeah, 11 vials of blood!! seriously, isn't that a little excessive? I wanted to ask if he was leaving any in my body. LOL.
So I'm not looking forward to this, needless to say. Oh and the icing on the cake, I'll be completely weaned off the prednisone and presumably experiencing full symptoms just in time for our trip to Toronto.
*sigh*
Tina
okay I'll start with what you already know....
I've been on prednisone to manage what everyone (myself and family doctor) thinks is a sarcoidosis flare up. So my family doctor had made a referral to the specialist for me.
...So I got a call last week to see if I could see the Rheumatologist/Internist on Monday (today).
So off I go...and before I was on the prednisone my inflammation level in my body was 60 something, which is very high, and I could hardly walk and stuff, and I was anemic and had chest pain (lungs) etc. so the prednisone has decreased my symtoms remarkably, but they hadn't been completely gone even on a high dosage. Even on 30 mg of prednisone, my inflammation level was still 35. (A normal person has a rate of 20). My family doctor had been slowly decreasing my prednisone to try to wean me to a lower dosage....
...So I go to see this specialist and he gets all my history, and checks all my joints, yes there is fluid in my knees...but he can't make a diagnosis while I'm on the prednisone because it's masking the symptoms. ..yeah...
I have to wean of the prednisone quickly. go down 5mg/3days til I'm off it completely, which will take less then to weeks, and we have to let all my symptoms come back, yup, the part where I can't even walk? yup...so he can see all the symtoms and make a positive diagnosis, oh and to manage the pain he gave me percocet.
I've been on that before when I had gallbladder attacks and it knocks me out. completely. So I"m like...um I can't drive or work on that..?
oh no you can't he says, I'll put you off work. No, you can't put me off work, I need to work, work=income, I need income. I know I could go on EI, but I don't want to, I want to work.
So he gave me a normal anti informatory that "might" work and manage the pain in the mean time that I can start taking once I'm completely of the prednisone, but anti inflammatories didn't work before... So he said if the pain gets bad enough that I have to take the percocet...to call and he'll put me off work... Fack!!!
He was also said that because I was on a high dosage of steroids and it didn't bring all the inflation out I may need a stronger drug, like a chemo (sp?) drug. WHAT? Are you freeking kidding me??? But he has to wait and make a positive diagnosis first. He said it could be the sarcoidosis, or it could be rheumatoid arthritis...or something different.
He said I'll have to go through allot of tests probably too, he sent me for blood tests today... 11 vials later...yeah, 11 vials of blood!! seriously, isn't that a little excessive? I wanted to ask if he was leaving any in my body. LOL.
So I'm not looking forward to this, needless to say. Oh and the icing on the cake, I'll be completely weaned off the prednisone and presumably experiencing full symptoms just in time for our trip to Toronto.
*sigh*
Tina
Monday, April 30, 2007
A yummy treat for a kid to eat
Another Tinarrific recipe. So this isn't a Tina original, it's a recipe my mommy used to make. But i'm sharing it anyways becauseit's super easyto make and and loved by kids everywhere, even big kids.
Peanut Butter Marshmallow Squares
INGREDIENTS
1/2 cup butter
1 (11 ounce) package butterscotch chips
1 cup peanut butter
3 1/2 cups miniature marshmallows
DIRECTIONS
In the lower pot of a double boiler, add water halfway to top and bring to a boil. Reduce heat to a simmer. In the top of a double boiler, heat butter, butterscotch chips, and peanut butter until melted. Remove from heat.
Stir in marshmallows.
Pour mixture in buttered pan. Refrigerate and cut into squares. Store in the refrigerator.
mmm mmm good.
Tina, Chef extraordinaire.
Peanut Butter Marshmallow Squares
INGREDIENTS
1/2 cup butter
1 (11 ounce) package butterscotch chips
1 cup peanut butter
3 1/2 cups miniature marshmallows
DIRECTIONS
In the lower pot of a double boiler, add water halfway to top and bring to a boil. Reduce heat to a simmer. In the top of a double boiler, heat butter, butterscotch chips, and peanut butter until melted. Remove from heat.
Stir in marshmallows.
Pour mixture in buttered pan. Refrigerate and cut into squares. Store in the refrigerator.
mmm mmm good.
Tina, Chef extraordinaire.
Saturday, April 21, 2007
My quirks
I'm a little late getting in on the blogging challenge this week, but better late then never right?
So this week Heather wants us to list our quirks. hehe.
- I can't eat anything animal shaped (i.e. chocolate bunnies, gummy bears etc)
- If I fall asleep at night before I'm done my prayers and I don't get to say Amen, then in the morning I have to do it all again as though it would all be invalid if I don't say Amen.
- I absolutely cannot eat peanut butter without a glass of milk.
- Raisin toast must be accompanied by cheese.
- I have full conversations with myself, including arguments, out loud.
- I can't stand anything on my counters, not even cannisters, they must be bare.
I know I have more, but that's all I can think of right now.
Tina
Wednesday, April 18, 2007
Name that tune...
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Have you ever?
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Tina fights back.
Okay eveil prednisone, it's on.
As most of you know, I've been whining non stop about how the prednisone is making me fat because of course it's a steroid and increases your appetite like crazy. I could eat 3 meals all at once and not be full. I proved it lsat night. I swear, it's aweful. I've gained 10lbs, well almost 10, in just 4 weeks.
The facts are, whether I like it or not, I'm going to be on this stuff for a few months at least. So I can sit back and do nothing and eat when I'm hungry and gain 50 or 60lbs or I can fight back.
I chose to fight back. I got up early this morning and went on the elliptical, my knees are well enough now that I cna start using it again. and I'm going to try very hard to cntrol the cravings and just eat alot of veggies.
Stay tuned for the next episode Super Tina versus the evil prednisone to see if I make it through the day without caving.
Super Tina
As most of you know, I've been whining non stop about how the prednisone is making me fat because of course it's a steroid and increases your appetite like crazy. I could eat 3 meals all at once and not be full. I proved it lsat night. I swear, it's aweful. I've gained 10lbs, well almost 10, in just 4 weeks.
The facts are, whether I like it or not, I'm going to be on this stuff for a few months at least. So I can sit back and do nothing and eat when I'm hungry and gain 50 or 60lbs or I can fight back.
I chose to fight back. I got up early this morning and went on the elliptical, my knees are well enough now that I cna start using it again. and I'm going to try very hard to cntrol the cravings and just eat alot of veggies.
Stay tuned for the next episode Super Tina versus the evil prednisone to see if I make it through the day without caving.
Super Tina
Monday, April 16, 2007
I'm enjoying my Monday!
I am. It's my Monday off. I'm actually being productive. I've done laundry, cleaned the kitchen and dining room and sun room, and now I'm going to move on to the upstiars bedrooms in a second, when I'm done taking a break.
So I worked all weekend, and that's all I'm going to say about that. haha
Things are going good I guess. Still dealing with the sarcoid, I go back to the doctor Friday, should have some more test results back. I'll update on Friday.
The prednisone is really annoying me. I'm fighting off the urge to constantly eat, I'm peeing like every five minutes, insomnia, weight gain, moon face, oh yeah, I look like a chipmunk. My stomach is nausious every morning, likley ulcers....thank-you prednisone. Can you feel the love?
So I think I'm ready to do some more renovations. Regan has her big girl bed now, so we want to finish her room. Must do spring cleaning soon too and have a yard sale.
That's all I got. I'm being boring today. No exciting parties to blog about. I think I'm going to tone it down a bit this coming weekend....low key....
Tina
So I worked all weekend, and that's all I'm going to say about that. haha
Things are going good I guess. Still dealing with the sarcoid, I go back to the doctor Friday, should have some more test results back. I'll update on Friday.
The prednisone is really annoying me. I'm fighting off the urge to constantly eat, I'm peeing like every five minutes, insomnia, weight gain, moon face, oh yeah, I look like a chipmunk. My stomach is nausious every morning, likley ulcers....thank-you prednisone. Can you feel the love?
So I think I'm ready to do some more renovations. Regan has her big girl bed now, so we want to finish her room. Must do spring cleaning soon too and have a yard sale.
That's all I got. I'm being boring today. No exciting parties to blog about. I think I'm going to tone it down a bit this coming weekend....low key....
Tina
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